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Ask Marilyn – How to Stay Involved?

Dear Marilyn:

The penis advice columnYou wouldn’t remember me, but we met many years ago at a conference. I’m an intactivist. I donate my time and money to the cause as much as I can. I am writing to ask you how you have managed to keep going for so long. You see, I am very angry at having been cut. I blame everyone involved for not standing up to protect me when I was just days old. Some days the pain is unbearable. And then there are good days when someone listens to what have I to say when I comment on Facebook. I have lost friends and family from my stance. I am struggling to stay involved in the movement. How do you do it? How do you stay sane amidst this insanity?

—Struggling in Colorado

Dear Struggling:

I truly understand the anger you feel for not having been protected from circumcision. The difficulty is, who exactly do we blame? I’m a regret mother because my culture and my doctor lied to me. I didn’t even know what the word circumcision meant, and my doctor didn’t explain. Instead, he said, “it doesn’t hurt, only takes a minute, and will protect your son throughout life.” I’m pretty sure your parents were pressured and lied to like I was, too. They surely had no way of knowing the pain it was going to cause you.

I will always feel terrible for not protecting my sons. What has driven my intactivism over the decades is working to stop circumcision so that other mothers and their sons won’t experience such pain. I encourage you to continue to speak out, too, about your experience. If some people don’t want to listen, it’s probably because they are defensive or in denial about what happened to them. But while they might reject your arguments, they cannot reject your experience, your truth.

—Marilyn

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Marilyn

Marilyn Fayre Milos, multiple award winner for her humanitarian work to end routine infant circumcision in the United States and advocating for the rights of infants and children to genital autonomy, has written a warm and compelling memoir of her path to becoming “the founding mother of the intactivist movement.” Needing to support her family as a single mother in the early sixties, Milos taught banjo—having learned to play from Jerry Garcia (later of The Grateful Dead)—and worked as an assistant to comedian and social critic Lenny Bruce, typing out the content of his shows and transcribing court proceedings of his trials for obscenity. After Lenny’s death, she found her voice as an activist as part of the counterculture revolution, living in Haight Ashbury in San Francisco during the 1967 Summer of Love, and honed her organizational skills by creating an alternative education open classroom (still operating) in Marin County. 

After witnessing the pain and trauma of the circumcision of a newborn baby boy when she was a nursing student at Marin College, Milos learned everything she could about why infants were subjected to such brutal surgery. The more she read and discovered, the more convinced she became that circumcision had no medical benefits. As a nurse on the obstetrical unit at Marin General Hospital, she committed to making sure parents understood what circumcision entailed before signing a consent form. Considered an agitator and forced to resign in 1985, she co-founded NOCIRC (National Organization of Circumcision Information Resource Centers) and began organizing international symposia on circumcision, genital autonomy, and human rights. Milos edited and published the proceedings from the above-mentioned symposia and has written numerous articles in her quest to end circumcision and protect children’s bodily integrity. She currently serves on the board of directors of Intact America.

Georganne

Georganne Chapin is a healthcare expert, attorney, social justice advocate, and founding executive director of Intact America, the nation’s most influential organization opposing the U.S. medical industry’s penchant for surgically altering the genitals of male children (“circumcision”). Under her leadership, Intact America has definitively documented tactics used by U.S. doctors and healthcare facilities to pathologize the male foreskin, pressure parents into circumcising their sons, and forcibly retract the foreskins of intact boys, creating potentially lifelong, iatrogenic harm. 

Chapin holds a BA in Anthropology from Barnard College, and a Master’s degree in Sociomedical Sciences from Columbia University. For 25 years, she served as president and chief executive officer of Hudson Health Plan, a nonprofit Medicaid insurer in New York’s Hudson Valley. Mid-career, she enrolled in an evening law program, where she explored the legal and ethical issues underlying routine male circumcision, a subject that had interested her since witnessing the aftermath of the surgery conducted on her younger brother. She received her Juris Doctor degree from Pace University School of Law in 2003, and was subsequently admitted to the New York Bar. As an adjunct professor, she taught Bioethics and Medicaid and Disability Law at Pace, and Bioethics in Dominican College’s doctoral program for advanced practice nurses.

In 2004, Chapin founded the nonprofit Hudson Center for Health Equity and Quality, a company that designs software and provides consulting services designed to reduce administrative complexities, streamline and integrate data collection and reporting, and enhance access to care for those in need. In 2008, she co-founded Intact America.

Chapin has published many articles and op-ed essays, and has been interviewed on local, national and international television, radio and podcasts about ways the U.S. healthcare system prioritizes profits over people’s basic needs. She cites routine (nontherapeutic) infant circumcision as a prime example of a practice that wastes money and harms boys and the men they will become. This Penis Business: A Memoir is her first book.