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Voices — John Toenjes

I’ve been reflecting on my life, and as I recount my marriages—I am on my third and last—I’m trying to understand why things happened as they did. Many factors can contribute to a relationship’s ending, of course. Lately, I’ve realized one of those, for me, was a lack of sensitivity in my penis, and the difficult conversations and misunderstandings that resulted.

I have suffered from erectile dysfunction for years. The desire was there; I just didn’t have the sensations I should have had in my penis. Even if I maintained an erection, it was almost like the penis was numb during penetration.

I was circumcised as a newborn. Recently I read that the sensation on the foreskin is very similar to that on the palms of your hands. When I take the fingers of my right hand and gently rake them across the palm on my left, it’s very sensitive. The first time I did it, I thought, Wow, that’s what the foreskin is there for. What a difference! But because doctors cut off that part of my penis, I was never able to feel those sensations during sex all these years. With the foreskin gone, all those nerve endings are gone.

I grew up on a farm. We wore jeans and no underwear—and I’m sure the repeated chafing of denim against the very tender skin of the exposed head of my penis didn’t help. It played a big role in my numbness because over time, the skin becomes calloused.

Primary care doctors don’t want to talk about circumcision. Believe me—I’ve tried. It’s kind of a forbidden subject for some reason. I once brought up questions about circumcision with a doctor, and he said, “You know, it’s a shame that you had to find out. It would have been better for you to just live in ignorance.”

I feel cheated. This is my body, and something was taken away from me that can never be regained. It makes me angry and I’ve dealt with so much grief over it. On the other hand, I have to come to grips with reality. I am 82 years old and there’s really no chance of regaining anything. I can’t solve what happened to me.

I’m glad to say that my two sons were left intact. I want that for all baby boys. That’s why I decided to write this—young male children should absolutely not be circumcised. Sometimes I would rather not say anything and just try to forget it. But I can’t forget every time I use the bathroom.

What have I missed out on? Maybe things could have been different. I’ll never know for sure. I just feel that if I can help a parent make the right decision, that’s what I really want. I can’t go back and change history, but I can certainly warn unsuspecting or questioning parents as to my experience and where it can lead.

John Toenjes

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1 Comment

  • Howard Smith

    Reply June 11, 2024 11:04 am

    My experience mirrors yours, John. Being circumcised has caused me a lifetime of distress ever since I discovered what had been done to me at the age of 6. Not only do I feel cheated and angry, but horribly violated. At the age of 60 I began having trouble achieving ejaculation, which then lead to ED, and ultimately severe ED. During that period I had a wonderful family doctor, an English lady, who was most sympathetic and tried very hard to find solutions as my issues evolved, ultimately to no avail. Like you, I think about it all the time and she even attempted to find psychological help to ease my distress, but in reality, what could they say – it happened and can’t be changed.

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Marilyn

Marilyn Fayre Milos, multiple award winner for her humanitarian work to end routine infant circumcision in the United States and advocating for the rights of infants and children to genital autonomy, has written a warm and compelling memoir of her path to becoming “the founding mother of the intactivist movement.” Needing to support her family as a single mother in the early sixties, Milos taught banjo—having learned to play from Jerry Garcia (later of The Grateful Dead)—and worked as an assistant to comedian and social critic Lenny Bruce, typing out the content of his shows and transcribing court proceedings of his trials for obscenity. After Lenny’s death, she found her voice as an activist as part of the counterculture revolution, living in Haight Ashbury in San Francisco during the 1967 Summer of Love, and honed her organizational skills by creating an alternative education open classroom (still operating) in Marin County. 

After witnessing the pain and trauma of the circumcision of a newborn baby boy when she was a nursing student at Marin College, Milos learned everything she could about why infants were subjected to such brutal surgery. The more she read and discovered, the more convinced she became that circumcision had no medical benefits. As a nurse on the obstetrical unit at Marin General Hospital, she committed to making sure parents understood what circumcision entailed before signing a consent form. Considered an agitator and forced to resign in 1985, she co-founded NOCIRC (National Organization of Circumcision Information Resource Centers) and began organizing international symposia on circumcision, genital autonomy, and human rights. Milos edited and published the proceedings from the above-mentioned symposia and has written numerous articles in her quest to end circumcision and protect children’s bodily integrity. She currently serves on the board of directors of Intact America.

Georganne

Georganne Chapin is a healthcare expert, attorney, social justice advocate, and founding executive director of Intact America, the nation’s most influential organization opposing the U.S. medical industry’s penchant for surgically altering the genitals of male children (“circumcision”). Under her leadership, Intact America has definitively documented tactics used by U.S. doctors and healthcare facilities to pathologize the male foreskin, pressure parents into circumcising their sons, and forcibly retract the foreskins of intact boys, creating potentially lifelong, iatrogenic harm. 

Chapin holds a BA in Anthropology from Barnard College, and a Master’s degree in Sociomedical Sciences from Columbia University. For 25 years, she served as president and chief executive officer of Hudson Health Plan, a nonprofit Medicaid insurer in New York’s Hudson Valley. Mid-career, she enrolled in an evening law program, where she explored the legal and ethical issues underlying routine male circumcision, a subject that had interested her since witnessing the aftermath of the surgery conducted on her younger brother. She received her Juris Doctor degree from Pace University School of Law in 2003, and was subsequently admitted to the New York Bar. As an adjunct professor, she taught Bioethics and Medicaid and Disability Law at Pace, and Bioethics in Dominican College’s doctoral program for advanced practice nurses.

In 2004, Chapin founded the nonprofit Hudson Center for Health Equity and Quality, a company that designs software and provides consulting services designed to reduce administrative complexities, streamline and integrate data collection and reporting, and enhance access to care for those in need. In 2008, she co-founded Intact America.

Chapin has published many articles and op-ed essays, and has been interviewed on local, national and international television, radio and podcasts about ways the U.S. healthcare system prioritizes profits over people’s basic needs. She cites routine (nontherapeutic) infant circumcision as a prime example of a practice that wastes money and harms boys and the men they will become. This Penis Business: A Memoir is her first book.